An online resource for young women with chronic illness
-
Sandra Ostapowich
- Female
- Loveland, CO
- United States
- Share
- Blog Posts
- Discussions (5)
- Groups (1)
- Photos
- Photo Albums
- Videos
Sandra Ostapowich's Discussions
Newbie Vent
The latest round of tests (Sjogren's, TSH, and who knows what) ALL came back normal again. But the cortisone shots into my hip bursae have REALLY REALLY helped. I'm finally without that pain (and the…
Replied Nov 11
Helpful Rheumatologist Visit Yesterday
I do. She reminds me of a female Gregory House. ;)
Replied Oct 31
Helpful Rheumatologist Visit Yesterday
3 Replies
After a bunch of strange issues with dry eyes over the last 6 months or so and a really bad few days pre-blizzard of '09, I made an appointment with my rheumatologist. Since we had been waiting for…
Started this discussion. Last reply by KD Nov 3.
Newbie Vent
This is true. I have noticed that once I do get moving around for about an hour, I feel significantly better. Most days I can push myself past that point and stay moving. It's been a really long and…
Replied Oct 23
Sandra Ostapowich's Page
Gifts Received
Sandra Ostapowich has not received any gifts yet
Latest Activity
The latest round of tests (Sjogren's, TSH, and who knows what) ALL came back normal again. But the cortisone shots into my hip bursae have REALLY REALLY helped. I'm finally without that pain (and the trigger points it caused) for the first time in a…
I have that struggle on a daily basis, I work 12 hour shifts, but never more than two. I have several ritual through the day that is constant so helps with pacing. I get up have a long shower, then dry my hair( it is the shortest it has ever been),…
One thing I know for sure as a babe with a chronic illness is necessary it is to be pro-active with my medical team.
Weird dreams? Maybe...I just thought I was weird and was just happy to be sleeping deeply enough to HAVE dreams... ;)
I don't know if it's insomnia because I can pretty much lay down and nap for at least an hour any time of day, whether I've had 4 hours of sleep or 14. My problem is that I'm a really light sleeper - the littlest thing wakes me up - including pain/d…
An ode to real sleep, and those who endeavor for it.
I do. She reminds me of a female Gregory House. ;)
The biggest thing is hope, even after things not being right for a long time. I still hope, and that is what makes my doctor work with me. I don't look for him for answers, but even tell him, soon, we will know more. I will do my part and he does hi…
After a bunch of strange issues with dry eyes over the last 6 months or so and a really bad few days pre-blizzard of '09, I made an appointment with my rheumatologist.
Since we had been waiting for a new symptom to point us in a direction for diagn…
This is true. I have noticed that once I do get moving around for about an hour, I feel significantly better. Most days I can push myself past that point and stay moving. It's been a really long and exhausting couple of days (15 hours at work on Tue…
You really need to watch for deconditioning. The less you do, the less you will be able to. You still need rest periods. Try pacing.I bet you would be surprised how little you can tolerate. It might mean resting every ten minutes. But that resting a…
Totally not! I did the bed until super late yesterday because I don't work Wednesdays. I can't imagine having a kid on top of everything else going on. We finally broke down and bought a dishwasher because we can't keep up with the dishes and then w…
It is 4:16 p.m. and it's all I can do to not crawl back into bed - where, incidentally, I have already spent the entire day. The only reason I'm not there now is because I had to pick up my son from school and the administration probably wouldn't be…
Profile Information
- About Me:
- Still undiagnosed, but have been a medical mystery since my teens. I have gotten one diagnosis of hypothryoidism, but I haven't noticed any different in symptoms despite tests finally being in the normal range for over a year. Seeing a new rhumatologist for the last year, who is stumped. So we're waiting for new symptoms that will give more clues. Oh, and I'm not just a mom, I'm a single mom (of a very active and TALKATIVE 7 yr old son). So if I don't do it, it doesn't get done. Fortunately, I have a very flexible job schedule.
Comment Wall (4 comments)
- At 12:31pm on October 13, 2009,
Jenni Prokopy said…
- Hi! Welcome to the ChronicBabe forum - I'm so excited you're part of the club!
We have a few simple rules, which are posted on the left-hand side of the home page. Please review them - I think you'll find they're completely reasonable. :)
And then jump on in for a chat, upload a photo or video, join (or start) a discussion, create or participate in a group - there are so many tools for us!
I can't wait to get to know some of my fellow ChronicBabes better, and to give y'all a chance to chat more about your issues and creative ideas. If you have any questions or issues, please email me at ideas@chronicbabe.com.
Thanks and best wishes, Editrix Jenni
- At 6:26pm on October 12, 2009,
Rachael said…
- Well, I seem to have picked up an actual contagious bug on top of everything else, so I've spent most of the last two days in bed or on the couch. I so know the feeling...
- At 4:51pm on October 12, 2009,
maureen said… - Sandra, I know the feeling, I just got up from a 2 hour nap. Don't get mad at youself...sleep is healing both physically and mentally!
- At 11:25am on October 11, 2009,
Whitney Fawn MacEachern said… - Welcome to the Chronic Babe forum!
About
Badge
© 2009 Created by Jenni Prokopy on Ning. Create a Ning Network!
