ChronicBabe Forum

An online resource for young women with chronic illness

Helping you live an awesome life in spite of chronic illness!


Forum Rules - Please Read!

1. Offer solutions and suggestions anytime you can. We want to build a supportive, positive community. If you're just here to complain, there's no room for that...please take complaints somewhere else.
2. Be nice. ChronicBabes are all about finding solutions, not starting arguments. Respect different points of view - you just might learn something.
3. Please don't use profanity, and we will immediately ban anyone who says anything racist, homophobic or otherwise inflammatory. Got it?
4. If you want to post a photo or two (not 10!) of yourself or something that inspires you, great - but don't use the photo or video section to advertise your business or you'll be banned immediately.
5. Have fun! As with all things ChronicBabe-related, we want the Forum to be a place where you can enjoy yourself, get fresh ideas, meet cool people and connect in a positive way. That will happen because you make it happen, so go for it!


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A few words on thoughtfulness

We are a community, which means there are many of us, all from different backgrounds and experiences. When we talk on the forum, we bring unique benefits - and biases - to the table. Please use care when responding to another member's question or statement; she (or he) may be going through a hard time, or may come from a different perspective. Try to be as factually accurate and respectful as possible, and remember that medical advice from another member should never take the place of a health care provider's advice. XO Jenni


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You're here! We are so happy. Some tips:

Welcome to the ChronicBabe Forum! As of today, we have more than 2,200 members! YES!!! And, we're growing faster than ever. Join the conversation...and be sure to "friend" Editrix Jenni!

If you're brand new to discussion forums, read this first. As you get comfy with our group, personalize your page and add a profile image (even if you want to be anonymous, give us something nice to look at!) You can add photos that will play in a random slideshow (many members already have, and they're great pics!), or videos for other Babes to watch (we have a bunch already!). You can create a Group within the community (maybe on a specific disease, or a goal you have) and you can chat with other members in our chat room (you can participate any time you're logged in.)

Like the Forum? Grab the Badge on the lower right-hand corner and post it on your blog to help spread our message. Because we're so new, there might be little issues; if you have things you would like to see, please email Jenni by visiting PLUS: Please read the FORUM RULES (to the left) before you dive into the conversation. Thanks!

Latest Activity

Jenny replied to Lynne Unz's discussion Help! So Tired.
"Hi Lynne, this seems to be a pretty old post but I just found it. How are you? Back in Marh it sounds like things were pretty rough. I hope you got a second opinion about your back and that things have gotten more manageable for you. Your doggie is…"
7 hours ago
Amy left a comment for Carolyn Kohl
"Welcome Carolyn!"
9 hours ago
Amy left a comment for ShawnaFace
"Welcome ShawnaFace!"
9 hours ago
Profile IconShawnaFace, Carolyn Kohl and Lenni Mattanja joined ChronicBabe Forum


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    ** Disclaimer **

    Babes, we are not doctors. Nor are we lawyers. In fact, we're just a bunch of women (and a few men) who are sick and want to share resources. So please be careful what you do after reading medical advice here. Always speak to your health care professional before trying a new medication, supplement, exercise routine, etc. and its staff are not liable if bad stuff happens to you, and we would hate for bad stuff to happen to you! So be smart, savvy, and do your own research. XO Jenni, the Editrix

    Blog Posts

    Are You For Real?

    Posted by lisa douthit on August 26, 2015 at 5:21pm 0 Comments

    I was recently asked to be part of the #BeReal campaign.  It's all about letting who you are on the inside out in the world.  As someone with an invisible illness, that was a little scary for me but I think it is time we had a voice.  What do you think?…


    Becoming A Warrior Princess - My Diagnosis Story

    Posted by Kymberli Ann on August 14, 2015 at 5:04am 0 Comments

    Ugh.  This just crushes my heart.

    Here's my tale :

    After five constantly sick years being a early education teacher, I found a fantastic career opportunity with my local major health center.  My new position was in registration, working with computers & people, two of the things I'm best at.  I would be verifying identities & insurances, getting signatures for consent, and being an optimistic friendly in the scary world of the emergency department.  I said my…


    Spinal Cord Stimulator

    Posted by Mary Dean on June 19, 2015 at 12:14am 4 Comments

    Earlier today I had a spinal cord simulator placed in my back...I have some seriously bad siatica pain and degenerative disc issues. I am doing a trial for 5 days. Has anyone used one of these? They are hoping it helps with my Fibro also. Any information would be great. BTW it appears to definitely helping with my pain but where they put the wires in hurts like a @#$#%!

    I'm Doing AWAP!

    Posted by Cheryl Chalah on May 27, 2015 at 9:18pm 0 Comments

    What am I up to? Hmmm? Had to have my 14 year old Bichon put to sleep Friday morning. I cried a lot that day. The next day I cried even more. I felt mentally and physically drained. Sunday afternoon I began to feel dizzy, my eyes felt like they were going to pop out of my head and had a headache. I spent a miserable night and the next day FINALLY took pain med which helped. I'm still here slightly better and of course my IBS has flared up. But, you know what? It could be worse! My older sister… Continue



    Meet Our Moderators!

    We have four main moderators on the Forum. Contact them with questions about etiquette, membership, tech support, or anything else that's confusing. Rachel is our lead moderator; Helen does a ton and she's on U.K. time; Amy is our chief spam banner (she's great at spotting them!). And of course Editrix Jenni is also here for you. 


    Jenni Prokopy created this Ning Network.

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    Latest from

    Why You Must Participate in the Online Chronic Illness Community (AWAP Wednesday)

    Today’s AWAP Wednesday video is all about community. You may think you’re getting great support from your immediate circle of friends and family, but babe—that’s enough. It’s time you boosted your participation in the online chronic illness community conversation. Watch today’s video, in which I explain some of my criteria for picking out online networks… and how […]

    We Get By With a Little Help From Our Friends (AWAP Wednesday) – All About Chronic Illness Advocacy

    Last week, I had the enormous pleasure of attending the U.S. Pain Foundation‘s annual pain ambassador summit and gala. It was positively awesome. Spending a couple days surrounded by people in pain and living with chronic illness might not sound like fun to some folks, but for me, it was so fun, and so many […]

    It’s Time to Half-Ass It (AWAP Wednesday)

    Today’s AWAP Wednesday video is all about being a half-ass. Yup, I said it: I want you to half-ass it. I know, crazy, right?! But seriously: Some days, when you want to give up, it’s more life-affirming to at least do something. Watch today’s video, in which I share a few ways I’m half-assin’ it on a day […]

    Join Me for Pain Awareness Month in September

    It’s not often that I write about a particular chronic condition. My work here at ChronicBabe has been focused on the idea that no matter what ails you, we all share similar experiences and can use common tools to craft lives that are truly exceptional, despite chronic illness… so talking about a specific condition doesn’t make […]

    How to Strengthen Your Relationship with Your Doctor When You Have Chronic Illness (AWAP Wednesday)

    Today’s AWAP Wednesday video looks at an issue ALL ChronicBabes face: Strengthening our doctor-patient relationships.To help you nurture stronger, more powerful relationships, I share the tactics I use to strengthen my relationships with health care providers (think: communication, research and preparation), which can help YOU get the treatment you need and deserve. Watch today’s video, in which I […]

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