Helping you craft an incredible life beyond chronic illness!

Meet Our Moderators!

We have three main moderators on the Forum. Contact them with questions about etiquette, membership, tech support, or anything else that's confusing. Helen does a ton and she's on U.K. time; Amy is our chief spam banner (she's great at spotting them!). And of course Jenni is also here for you. 

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Forum Rules:

a few notes on etiquette and guidelines for a healthy online support group:

- please be respectful, even when you disagree. i encourage you to share your opinion and perspective, and discuss alternative approaches and ways of thinking.

- offer support and suggestions when you can. in fact, on days when you feel tapped out, try to do so anyway... it feels great to help others and it can lift you out of a funk to know you've brightened someone's day.

- if you discuss a particular medication or treatment modality, remember that what works for you may not work for others. you should never try a new treatment approach without discussing it with your health care team. i'm not a doctor.

- please do not use profanity. i don't tolerate any bullying, bigotry, racism, or judgment of others in any way, so check your judgment at the door. we can all learn from each other no matter our color, sexual orientation, ability, religion or fashion sense.

- if you participate in the conversation, you must follow these guidelines. meanies will be banned. awesome people will be hugged (virtually). smooches!

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A few words on thoughtfulness

We are a community, which means there are many of us, all from different backgrounds and experiences. When we talk on the forum, we bring unique benefits - and biases - to the table. Please use care when responding to another member's question or statement; she (or he) may be going through a hard time, or may come from a different perspective. Try to be as factually accurate and respectful as possible, and remember that medical advice from another member should never take the place of a health care provider's advice. XO Jenni

Members

** Disclaimer **

Babes, I'm not a doctor or lawyer or healthcare provider. I'm just a sick chick who loves helping others - and the same is true for just about every member of our forum. So please be careful what you do after reading medical advice here. Always speak to your healthcare professional before trying a new medication, supplement, exercise routine, etc. ChronicBabe.com, my staff and our volunteers are not liable if bad stuff happens to you, and we would hate for bad stuff to happen to you! So be smart, savvy, and do your own research. XO, Jenni

Welcome to the Forum! Some Tips:

Welcome to the ChronicBabe Forum! You're now part of a community of nearly 3,000 members, women (and a few men) who are crafting incredible lives beyond chronic illness. YES! Join the conversation...and be sure to "friend" Jenni Grover Prokopy, founder of ChronicBabe.

If you're brand new to discussion forums, read this first. As you get comfy with our group, personalize your page and add a profile image (even if you want to be anonymous, give us something nice to look at!) You can add photos that will play in a random slideshow (many members already have, and they're great pics!), or videos for other Babes to watch (we have a bunch already!). You can create a Group within the community (maybe on a specific disease, or a goal you have) and you can chat with other members in our chat room (you can participate any time you're logged in.)

Like the Forum? Grab the Badge on the lower left-hand corner and post it on your blog to help spread our message. If you have technical issues, please email Jenni by visiting www.ChronicBabe.com/contact. PLUS: Please read the FORUM RULES (to the left) before you dive into the conversation. Thanks!

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Monica Jefferson replied to Susie b's discussion chronic illness and dating
"Hi, I think that you should say about it at first date. Maybe I watch on it from my view because I have herpes and about this disease like here https://illnessee.com/ I should tell right away. It's hard but better cut off people who…"
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chronic illness and dating

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    Blog Posts

    Chronic Illness Impact on Well-Being Study!!

    Posted by Emily Berk on October 24, 2016 at 5:53pm 0 Comments

    Hello everyone,

     

    My name is Emily Berk and I am currently in the process of doing research for my Senior Research Thesis for Sociology. In short, the mission of my research is to understand how chronic illness impacts well-being. In order to do this, I must conduct interviews with individuals with a chronic illness.

     

    I am reaching out to anyone who identifies with having a physical chronic illness in hopes that you will be willing to help me with…

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    The Black Dog and ME

    Posted by Lisa Bond on August 23, 2016 at 9:43am 0 Comments

    The black dog is of course a metaphor that was used by Winston Churchill to describe his depression. Although it is believed this expression is much older than that.

    I don’t like standing near the edge of a platform when an express train is passing through. I like to stand right back and if possible get a pillar between me and the train. I don’t like to stand by the side of a ship and look down into the water. A second’s action would end everything. A few drops of…

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    My Story

    Posted by Andrea G on July 9, 2016 at 12:11pm 0 Comments



         I have lived with depression from a very young age. I was being seen from 4th grade by a therapist and carried it on most of my life. As a baby I was always sick, needing shots to boost my immune system. Through my teenage life it was all pretty standard, I got colds often, flu, the depression lingered and I lost a lot of people from being so withdrawn. I started getting tremors at 20, and some days are worse than others with it.

         Recently, I lost my first pregnancy in…

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    Lovely insurance

    Posted by Brooke B on June 15, 2016 at 10:10pm 0 Comments

    so I learned recently that if you need a medical necessity such as a travel size oxygen concentrator they won't cover it at all not one penny will they spend on it.  I made a Go Fund Me account just for that and it has been very helpful to me so far with people who have donated.  I need this machine because my CO2 level will go up at night without it if we go to places.  My lungs do not work well and I use a home oxygen concentrator as well as a Bipap machine; it is not easy traveling with…

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