ChronicBabe Forum

An online resource for young women with chronic illness

Helping you live an awesome life in spite of chronic illness!


Forum Rules - Please Read!

1. Offer solutions and suggestions anytime you can. We want to build a supportive, positive community. If you're just here to complain, there's no room for that...please take complaints somewhere else.
2. Be nice. ChronicBabes are all about finding solutions, not starting arguments. Respect different points of view - you just might learn something.
3. Please don't use profanity, and we will immediately ban anyone who says anything racist, homophobic or otherwise inflammatory. Got it?
4. If you want to post a photo or two (not 10!) of yourself or something that inspires you, great - but don't use the photo or video section to advertise your business or you'll be banned immediately.
5. Have fun! As with all things ChronicBabe-related, we want the Forum to be a place where you can enjoy yourself, get fresh ideas, meet cool people and connect in a positive way. That will happen because you make it happen, so go for it!


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A few words on thoughtfulness

We are a community, which means there are many of us, all from different backgrounds and experiences. When we talk on the forum, we bring unique benefits - and biases - to the table. Please use care when responding to another member's question or statement; she (or he) may be going through a hard time, or may come from a different perspective. Try to be as factually accurate and respectful as possible, and remember that medical advice from another member should never take the place of a health care provider's advice. XO Jenni


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You're here! We are so happy. Some tips:

Welcome to the ChronicBabe Forum! As of today, we have more than 2,200 members! YES!!! And, we're growing faster than ever. Join the conversation...and be sure to "friend" Editrix Jenni!

If you're brand new to discussion forums, read this first. As you get comfy with our group, personalize your page and add a profile image (even if you want to be anonymous, give us something nice to look at!) You can add photos that will play in a random slideshow (many members already have, and they're great pics!), or videos for other Babes to watch (we have a bunch already!). You can create a Group within the community (maybe on a specific disease, or a goal you have) and you can chat with other members in our chat room (you can participate any time you're logged in.)

Like the Forum? Grab the Badge on the lower right-hand corner and post it on your blog to help spread our message. Because we're so new, there might be little issues; if you have things you would like to see, please email Jenni by visiting PLUS: Please read the FORUM RULES (to the left) before you dive into the conversation. Thanks!

Latest Activity

Amy left a comment for Lisa Niccolls
"Welcome Lisa!"
11 hours ago
Lisa Niccolls is now a member of ChronicBabe Forum
13 hours ago
Lindsay Hill commented on mollie montgomery's group CFS Babes
"Hi there, I haven't found much luck with active groups that I'm interested in on the forum but I think it would be nice to talk to other cfs ladies. I'm currently contemplating applying for long term disability, I've been sick…"
Lindsay Hill joined mollie montgomery's group


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    ** Disclaimer **

    Babes, we are not doctors. Nor are we lawyers. In fact, we're just a bunch of women (and a few men) who are sick and want to share resources. So please be careful what you do after reading medical advice here. Always speak to your health care professional before trying a new medication, supplement, exercise routine, etc. and its staff are not liable if bad stuff happens to you, and we would hate for bad stuff to happen to you! So be smart, savvy, and do your own research. XO Jenni, the Editrix

    Blog Posts

    Hi, I'm New!!

    Posted by Meghan Curran on September 23, 2014 at 1:14pm 0 Comments

    Hey babes!

    So I am  new to this, so I thought I'd introduce myself and tell you about my experience with Chronic  illness.

    I was diagnosed with ME/CFS in June 2013. I had all the tests that took some time and then my doctor sat me down and said "You have ME, there isn't much that can be done,  I'll sign you up for CBT and GET". He explained what it was and then pretty much sent me on my merry little way.

     In the UK, the lack of understanding, awareness and funding are…


    Chronic pain without narcotic pain killers

    Posted by Dana Wilber on July 23, 2014 at 9:32am 0 Comments

    Hi --

    I have been dealing with chronic migraines/persistent daily headache for 3+ years and the only thing (trust me, from botox to nerve blocks to multiple hospitalizations for DHE) was narcotics for the pain. Needless to say, that just got worse and worse. Just got a new dr who I really like and I wanted to go to her clean so I quit the pain meds cold turkey. Two things I learned.

    A) Don't do this by yourself unless you want to go nuts

    B) Don't do this by…



    Posted by Ali H on July 3, 2014 at 1:34pm 2 Comments

    Hey all you lovely babes,

    I'm back!!!

    I ended up taking a long break from the chronic babe site to figure out medical stuff and then I went through some personal losses. But I'm back, and excited to be a part of this community.

    Since I last was here, a lot has happened. I was diagnosed with Dysautonomia in September of 2012 and in January of this year I was diagnosed with Gastroparesis. Both have altered my life dramatically. Of course I'm doing my best not to let that…


    A bit about my journey.

    Posted by Anna on June 5, 2014 at 12:13am 0 Comments

    The chronic illness journey has been a tough one. I find it hard sometimes not to look back and wish I had done things differently and had had better support, but I am trying to take it a day at a time and not spend too much time pitying myself and regretting the past. Depression in childhood led to an eating disorder (Anorexia), then Vulvodynia, then chronic pain/Fibromyalgia. Initially I tried to stay physically active and able, but have become more dependent on others over…




    Meet Our Moderators!

    We have four main moderators on the Forum. Contact them with questions about etiquette, membership, tech support, or anything else that's confusing. Rachel is our lead moderator; Helen does a ton and she's on U.K. time; Amy is our chief spam banner (she's great at spotting them!). And of course Editrix Jenni is also here for you. 


    Jenni Prokopy created this Ning Network.

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